Monday, December 12, 2016
Ending an 8/10 fibro pain flare
If I include yesterday: I endured a pain flare
for 11 days
in a gradual manner, due to the current fiscal policy of my household. If J doesn't agree with my going to my pain doc at Novena — to get an IV jab to end a pain flare as soon as possible — it means I cannot get it even I use my bank account for it. It costs around $400 for four meds in total: Fentanyl, morphine, paracoxib; and Zofran to offset the headaches and nausea that are side effects of these analgesic meds.
I was advised instead to rest, because I didn't need to rush anywhere, not even to the toilet. I did stay in bed for most of the 11 days. No, I did not get a urinary infection.
The only other thing I was advised by the CGH pain doc when a situation like this happens, was to just take an extra dose of oral oxycodone (5mg): out of the same prescribed number of capsules. Which means I would have to skip doses along the way to make up for the extras I took. Because of the severity of the pain I had, it is not a sustainable option anymore; I simply cannot make up for all the extras I had to take, to get by the past week and a half. No, the public hospital folks could not offer me any injectible pain relief options. I will try to bring forward my next appointment with the public healthcare doctor if possible. If not, I am doomed to go back to the private healthcare sector for help that government-subsidised hospitals will not offer.
The last time I had this same long, drawn-out pain flare, was for 10 days when I was still in CGH. My pain management team of nurses could really emphathise with how deep the pain went, but could only tell me to rest and take my oral meds, do deep breathing — that's all. It was an exhausting ordeal, even when at that time I had nurses to help me. This time I was on my own in the weekday mornings and afternoons.
Here is how I coped the past one and a half weeks. Unyielding pain, that ran up to even 9/10 at one point, made me physically fatigued. I slept a lot, unrefreshing sleep, but the inactivity gave me relief. The other way I coped was with essential oils, which cost by approximation about half the price of the IV injection I wanted to have. $200ish dollars on essential oils is nothing to sniff at, pardon the pun. But I had no other choice. On my pain charts it proved to be tied 50-50 with inactivity as a mode of pain relief. I used frankincense, copaiba, and Idaho balsam fir on acupressure points on my earlobes, palm and feet. The effects were significant but did not last long, so I had to keep re-applying them.
What frustrates me most about this gradual method of getting out of a pain flare, is that my muscles deconditioned for 11 days, undoing much of the exercises and occupational activities I burden myself with every day. The time-frame of this pain flare also meant that I had to skip my weekly physiotherapy at the hospital.
The concept of an injectible pain relief solution is so that a patient can "break out of a pain cycle" and not keep on taking more and more oral medication that wouldn't help much. After this breakout we can go back to simply taking our baseline medications, instead of an increased level of them to the point of having side effects like headaches and nausea, (which I have already been experiencing since yesterday). I also now find it even more difficult to try and reduce my pain medication as far as possible, which is the general plan for long-term pain management.
Furthermore, the aptitude of my private practice pain doctor meant that he can quickly and deftly inject the meds intravenously instead of via an intramuscular route (IV instead of IM) — without a need for a drip set-up, or IV catheter. It is fast, quick, and utilises the least possible resources and time.
At the heart of many chronically ill folks like me, we just want to be productive. This kind of non-breakthrough pain relief is inherently discouraging. Before this happened, I had intentions of changing my exercise regimen to include more core exercises and step up my rate of recovery. My physiotherapist was aiming for exercises to improve my balance.
Right now I am also experiencing fatigue and light sensitivity. I need some more no-stimuli naps, and take it easy today, even though I can safely say that the pain flare is more or less over. It is always prudent to plus one more day of rest and inactivity before slowly pacing yourself back to a state of normal.
Today, Sayang is parked on me
; being the sensible and sensitive one in our brood, she knows I need to slowly get myself to normal. She meowed at me when she saw me scrubbing the toilet earlier, as if in scolding. She got frustrated when I kept getting up and down from bed, and I had to in some way go back to a state of rest that she felt I should be in before she would give me her attention.
|Sayang being a lap-park cat|
In psychodynamic therapy I have weekly, we examine a lot of links between my thoughts, feelings and actions of today, and my emotionally traumatic childhood. Similarly, something my first psychiatrist told me, resonates with how I feel about this whole ordeal. Which is that when I was five years old, I could only have my mother's attention when I fell sick and she had to stay home to take care of me. Ties between my sicknesses and the love I wanted, formed a condition right there, because after that one incident, my mom never gave me attention like that ever again in my childhood. I wanted it then, and I want it now, My mother was willing to pay for my pain jab last week when I had a day the pain hit 9/10. But $400 is $1,200 to them and a definite dent in their retirement funds, so I didn't want to accept.
Conversely, as I now begin to realise, is that every time the government healthcare system fails me, I feel it is because I am not worthy of help. J felt I had nowhere to go in a hurry, so I could wait out the 8/10 pain flare instead of getting a jab. This premise is in fact a low blow, because it meant that not only was the system failing me, my other half also felt I was not worthy of help as I deemed fit. I was doing nothing, meaning I was in no way of help to society, because full-time recovery is not an economically productive activity.
I am now already used to feeling like this. I will still stand strong in this emotionally-wrought chronic illness ordeal.
Labels: me, state, status, therapy, worlds
Friday, December 02, 2016
I am so exhausted; I had a fibro flare-up. Which has made me not only pain all over in the morning when I had to go for psychotherapy, but so much fatigue right now, and I can't see as clearly as usual even with my reading glasses.
I just packed a tiny part of my room - the jewellery boxes, but am otherwise listing down and being as still as possible. I can't even be bothered to put pants on.
I've recently started using an all called Manage Your Pain Lite. It is awesome. I just emailed my physiotherapist my latest pain report PDF. It contains information on my pain scores, what aggravated each time I had a high score, and what alleviated it. It even has cool charts and graphs.
In the free version of this app, which is what I am using, can generate PDF reports but not including the graphs and calendar. Still, the report itself is already very much a good one-glance document. Here are some screenies from the PDF.
Not shoddy at all. I'm still learning to navigate the app, but I'm liking what they have.
OK, I will end here; blogger is making things difficult for me -, I've already written this conclusion paragraph three times. Gonna just go heat pack my shoulders.
Labels: share, state, status
Tuesday, November 29, 2016
Paying For Care, Impressing My Loved Ones to Care and Failing to Be Cared For All the Same
I am sure most of you would agree that repression is not any good for the soul. With that in mind, repressing my account of the story below has taken strong medication to make me keep it to myself lest I anger people - making people around me upset is one of the motivating factors behind many things I do - but it has merely calmed the physiological trauma symptoms. So here I am, writing all of the hurtful things I experienced yesterday night.
On that note, in the light that undergoing psychodynamic therapy
has cast on many aspects of my life, I realise that many actions of mine are postured with the fear of making J upset. I have in fact been trying to impress the people I love since I was young. I tried to impress my parents, so that they would find me worthy of their love. Because of that, when I was asked to do something I would likely do badly in (by my own perfectionist standards), like play the organ for them to listen, or speak Mandarin, I refused to, until they gave up asking. Instead, because my parents were proud that I was proficient in my mother tongue - English - thus I made sure I tried my very best to read every book they bought for me even if it may have been a bit beyond my age range of understanding. I believe that this proficiency in English was something that helped me gain some love from my parents. I managed to get some verbal affirmation from them for this, and that helped me feel worthy of their love. On the other hand, crying because I was emotionally hurt, was so prohibited by my parents that I never felt safe to cry in their presence until I was 17 years old. The repression of crying and negative emotions made me often hide away to cry, for my entire childhood. When I had to start seeing a psychiatrist, I felt I let them down, and only revealed this to them reluctantly, because negative emotion was something that would make me even more unworthy of their love.
As I grew into adulthood, I did the same posturing with my boyfriends. The fact that I was unworthy of love was pummelled into me with hurtful actions and words from them, H being the main perpetrator among all my exes. Even C, who said hurtful things towards the end of our three-year relationship, praised me verbally when I did something well in his eyes. With J, I get extremely anxious about him being upset. All I want is to make him happy. I fail most of the time. Every time he is upset, I feel it is my fault. I try my best to make him feel better. This is so even when he is the one in the wrong. And yet, I am not worthy. Why is my very being, not enough for my other half?
This sets the stage for the story I am writing about today.
My new psychiatrist at CGH - Lim - assigned to me when I was admitted to hospital on the day of my suicide attempt this year - is incompetent; I feel unsafe and traumatised by every single of other five times I have had a consult with him. I will now list the reasons why he is not a good doctor.
- In the place of having a conversation with me, his patient, he prefers to pontificate. There is no room for me share how I feel, my concerns; he rarely even asks questions, and when he does, he does not give me the courtesy of paying attention to my replies. Three of the five times I have had a consult with him, he spars with me verbally. My mother told me that on the day I was admitted and talked with him, he was arguing with me. My mom and dad are bewildered by the fact that a doctor behaves like this. Such behaviour is not right when talking to someone without a mental illness, and much less so when talking to someone with post-traumatic stress.
- He is no bedside manners at all. When I talk to him, he is looking at the computer screen, typing. No eye-contact. Closed body language. If I start to cry because of intense emotions, he ignores it completely. Every psychiatrist, psychotherapist, counsellor I have met will offer me tissue. He never does. No tissue offered is not as bad as someone stopping what they are doing and offer to listen in order to calm me down.
- He has no understanding of me as a patient. After I had already started psychodynamic therapy for a while, he decides to inform me why I should go for psychodynamic therapy. It is simply incredulous, to ask me to do something I am already doing on a regular basis, as if I was uncooperative, when in fact I enjoy my sessions with Dr T a lot, and in fact the only reason why I am still seeing Lim is because that enables me to see Dr T on a subsidised rate. He did the same verbal theorising to me about my sessions with my psychologist while I was inpatient. I had already been having sessions with my psychologist weekly. He spoke at me to verbally strong-arm me into attending sessions with my psychologist. This is like saying to someone who is busy eating a burger and already halfway through, to exhort him to eat a burger.
- When I ask him whether Lexapro, my first-line antidepressant I had been taking for years and with tangible effects in the past and also helps with anxiety, that he had struck out of my psychopharmalogical regime, could be reinstated - he said no. Fair enough, he is a doctor. But when I asked him for reasons why I shouldn't be on it, you would reckon the doctor would explain with medical reasons: why it is harmful to go back on it, or why with my present state of health I no longer need it. His answer was neither of these, but, "Who has a better track record with making decisions, you or me?" If you ask a GP for antibiotics for the flu' and he says no, you would likely get a reply like, "This is a viral infection, antibiotics are for secondary bacterial infections and therefore won't work, so it is no point taking them, unless you show signs of a bacterial infection." I hardly believe you would get the reply that Lim gave me.
- He has seen me for a total of five times. I might have miscounted; maybe it was six times instead. Nonetheless, compared to the years I saw Dr Kong before, and Dr Marcus after, he definitely does not know me as well as they did. Furthermore, they are private doctors, their salaries are directly impacted by their performance as doctors, whereas public service doctors don't suffer from a loss in income if their patients aren't treated well. Kong, who wrote a thesis on only-child environments causing mood disorders in the 70s, attributed my symptoms of depression an anxiety to being an only-child raised by a slew of foreign maids. He also believed that my symptoms were due to emotional trauma in childhood - something based on the attachment theories by John Bowlby. Dr Marcus had also said before that he believed my depression was organic, and not a personality disorder. However, after the grand total of five or six times Lim has seen me, he decides all these years those two doctors were wrong and what I have is borderline personality disorder. I have read BPD symptoms over and over, think of people I know who have BPD, and I really do not identify with the disease. I told Lim that I don't agree with his diagnosis, which is based on very little information he has on me. He said that "We shall have to agree to disagree" and continued typing on the computer.
- In our last consult - that was when he said I have BPD - I broke down and cried in his consultation room, because he refused to listen to me and why I believe that he was wrong. I break down and cry when I see Dr T too, during therapy. However, Lim told the management that I was causing "loud altercations." In a psych clinic, almost every patient would be prone to breaking down into tears. How could this be construed as causing "altercations"? If you term it as a nervous breakdown and corral me into a safe/isolation room, it would be far less a betrayal than saying I caused "altercations".
- The management was informed that I caused "loud altercations" because we were in correspondence with them. Lim suggested in my last consult with him, whether I would like to change doctors. He then later said, when I went to the clinic for my regular appointment with Dr T, he failed to find any doctor within the entire psych clinic at CGH. We wrote to the management to appeal to them to find a way we could change doctors. The management declined, saying at first that they cannot find another doctor, then saying that I had caused these loud altercations when I had broken down in tears, that I disagreed with his diagnosis, so they no longer want me to see them for my psychopharmalogical needs. The fact that Lim can impress upon the management that these are characterisations of my behaviour when I have done nothing wrong, is a low blow indeed.
- Because of his behaviour and actions I feel unsafe being in a consultation with him alone. He may not be physically violent but he is meting out dictatorial emotional oppression. I feel as fearful being in a room with him as I would in the presence of someone who is close to violently attacking me.
Another letter came from CGH yesterday, stating that I should go back to seeing Lim - that was their way of resolving the matter. It was so hurtful. The healthcare industry, doctors, nurses, therapists - all of these are meant to help patients feel better. But all this has caused me mental anguish instead. I broke down and cried because of this letter and how badly it hurt me emotionally.
Then J got angry with me, he wanted me to shut down the crying and hurt and eat dinner instead, so he walked out the room saying he will eat outside (we normally eat in the bedroom). This was another blow, that hurt me even more than the letter. His walking out and intolerance of my tears, gave me flashbacks to hurtful events in my past, when I would get scolded for crying, when my mother would push me aside when I went to hug her because I missed her for coming home late.
Is it really so difficult for someone to just stop everything and hug me while I cried, or simply offer me tissue? I have a fear of abandonment: is it that difficult to not walk away while I am upset about something? My whole life I have been trying to impress people close to me so that they would care about me emotionally, but I am still unworthy of a hug and tissue. I am still to blame for being hurt by the healthcare practitioners that we pay to care for me. I am still to blame for being hurt by the people I love. I must never cry, because it irritates my husband and makes him angry.
When I first met J eight years ago, he would comfort me when I was down. Today, I can't even get him to place his hand on me as a show of comfort, something that any normal person would do to comfort someone in distress. In fact, because I still don't have good balance, whenever I nearly fall, he wouldn't come to check on me to see if I am okay. I have run out of ideas to get affection from people I love.
The events of yesterday: being hurt by CGH, being hurt by the man I love, made me so despondent. I haven't felt such mental anguish since before my suicide attempt at the bridge. I don't want to live, but I also don't want to abandon my children, I also want J to get the flat we will co-own in 2 years, and frankly I am out of energy to coordinate the necessary factors for a successful suicide attempt. I am done, I will just live through this lack of affection, concern - love, even - for as long as possible.
Labels: state, status, therapy, worlds
Friday, November 18, 2016
Gamifying My To-Do List - #Spoonie Style
Being a Type A sort who obsesses over getting things done, while grappling with physical disability and mental illness, means I'm always cycling myself into self-loathing, flight-or-freeze anguish.
It took me a while but I finally managed to design a system for getting things done that actually works - specific for spoonies
like me who find even getting out of bed too difficult, too often.
Here is what I do:
1. Create a master list of tasks you need to get done.
It would be an utterly complete list of things you would ideally like to get done should you have no health obstacles in a day. This list should not contain any activities that reap no benefits towards achieving your objectives, such as watching Netflix. Break tasks down into micro-steps where possible, for example: instead of just writing down "take a shower", break it into "shower", "wear clothes", "brush hair" and so forth.
2. Optional: categorise the tasks.
(For me, I've categorised my recovery tasks into ADL - activities of daily living; reading, writing, exercise.)
3. Create a Bonus column that lists your stretch goals
- things that are more difficult to achieve, but not impossible.
4. Tally the total number of tasks.
I have 36 on my master list. I round up the number to 40 for ease of calculation.
5. Every day, draw up a "blank" to-do list
, where instead of writing everything you want to do for the day, you fill in the list with every task you complete based on your master list from step 1. At the bottom of this empty list, you will at the end of the day, calculate how many points you score. E.g. [X/36] where 36 is your tally from step 4.
6. Every item completed gives you 1 point; for items from the Bonus section, award yourself 2 points.
This goes towards your tally of marks. Your aim is to pass and obtain 50% out of your total tally from step 4. You can improve on this scoring system by setting yourself higher or lower percentages that you wish to obtain for the day.
I call this system my "dailies" which is a term from my youth when I played World of Warcraft and did daily quests for gold. The daily quests reset every 24 hours. The gold rewards were why we did them.
To further enhance this system, please set aside at least one day out of every week where you do not bother with trying to score any points. I call days like these "days of no-obligations".
If you are a spoonie like me, you will have to insert more than one day of no-obligations in a week. For instance, if I have a pain flare on Monday, I make Monday a day of no-obligations, plus Tuesday. Wednesday I set a lower score necessary to pass my dailies. For days where I have to go out for doctors' appointments and physiotherapy, I also make those days no-obligations. You can also consider combining weekends into one day; the aggregation of two days' worth of dailies are considered as one total score. In total, I gun for 4 out of 7 days a week where I strive for productivity. One of the categories in my master list is 'exercise' so it means I exercise 4bout of 7 days a week, which is something my physiotherapist considers a fairly good sum.
I combine this system of doing my dailies with other productivity motivation techniques that I have learned:
I find myself completely tired by nightfall, so I aim to do my exercises before that, usually in the late afternoon. I give myself rewards for getting dailies done, simple things like a cold juice after completing five exercise sets.
I combine tasks that have to be done at the same location - to feed my cats, I have to go to the kitchen, which is where my supplements are kept. Both feeding and taking my supplements are on my list of dailies, so I can get them both done at the same time. This applies to an office setting as well
. For example, if you need to go to another department office to get one thing done, aggregate other tasks that can be done along the way to that department floor. If your mail pouch is located near the photocopying machine, get "collect mail" and "print meeting agenda" at the same time, instead of walking to that part of the office twice.
Through using this system, I've managed to break free of that vicious cycle of anxiety that keeps me from getting important thing done. I hope it will help you too, if you sometimes get trapped in the same "Dammit, there are so many things I need to do, I just...can't" situation.
Thursday, November 10, 2016
I've had friends throughout my life who were good to me as well as friends who were mean to me. I know you're probably thinking, mean people are not my friends, friends wouldn't be mean to each other. But I've willingly continued in friendships with people who always wanted their way and their say, even if it hurt me.
I don't know what that pattern is a symptom of; everything has its source. I guess it could be that I tend to love too unconditionally, even beyond a point when it is no longer healthy for me to do so. I often go into interactions with people with an implicit trust that they will do unto me what they would want done to themselves by others. Another reason could be that I'm so hungry for friendship and affection, that even if you slapped me in my face and called me a wretch, I would still regard you as a friend, because I need someone, not bearing with the emotional abuse means letting go of someone I love. Both reasons are probably true.
What does this mean then? It boils down to just poor little Elaine as a young child, again. Back then, I wished someone would give me emotional and physical intimacy. Today, I'm still starving for those things.
Thursday, November 03, 2016
#avalonreads On the Theme of Escapism
The theme of escapism has bubbled to the surface in my recent readings, and may partly also account for my lack of writing - of book reviews, or blog posts on any other subject. (I would at least post on Instagram, but my camera is not working, hence some silence from me in that realm.) I keep immersing myself in reading, with some reluctant physiotherapeutic exercise as an accompaniment. Have I sunk into reading as an escape?
I'm no stranger to escapism, be it the neutral activities of watching YouTube documentaries non-stop, or playing game after game of Sudoku, or those almost socially-unacceptable addictions to alcohol and cigarettes. It is a way I dissociate; numbing myself and thereafter becoming someone else that is not me, and it means distancing myself from the pain and anguish I accumulate within every day. These activities require very little thought, and because they are mindless they seem even more dangerous as addictive means of escape.
I've been quite disciplined, focusing on, apart from the necessary chores of daily life, exercise, reading, and writing (in my journal, minimally). But sometimes I read excessively and instead of exercising and whatnot. I hardly nap anymore, which is necessary for managing the symptoms of fibromyalgia. I've noted my obsession with reading in earlier posts, but obsessions need not be addictions. I should stop clicking post after post after post on websites, or finishing one chapter after another and another, in a way that gives my day little manoeuvre for other activities.
I read this story on New Yorker, Relive Box by T. Coraghessan Boyle, which reminds me of spec-fic novels by a favourite author of mine, Margaret Atwood. The Relive Box is a console that allows you to experience in virtual reality, user-specific times in your past. The protagonist often relived till dawn, and it affected his work because he wasn't sleeping. That sounds like me when I delve into a video game. I would start at 8pm and the next time I looked at the clock, it would be 10am.
The Noonday Demon (which I'm almost halfway through) covers the correlation between depression and addiction. Andrew Solomon expounds on the nature of addiction and includes his own propensity to indulge in substance abuse. He writes:
"It gives me a kind of blissful energy and a sexual exuberance and a feeling of superhero power that are quite fantastic. I get to the point of being unable to string together a sentence and I don't care if I never string together a sentence again. I realise that the solutions to everything are simple and straightforward. Being high on cocaine breaks up your memory enough so that the past can't haunt the future. The chemical happiness of a good hit of cocaine feels completely uncircumstantial. I can remember sitting around with a numb nose, thinking that if I could freeze life in that second, I would do so and stay there forever. I almost never use the drug, but the idea that I would never want it is ridiculous. I fell in love with cocaine in those first minutes of rush. The spectre of imbalancing my brain and the devastating hangover are all that keep me away from the cocaine high."
How is substance abuse different from the high of reading and gaming, when all these activities allow us means of escape? I just finished this novel The Less Than Perfect Legend of Donna Creosote by Dan Micklethwaite, which is a light read about a woman who spends her lonely nights in the fantasies concocted by books she has read, of which there are so many that her floor is tiled with them. She has another deeper hidden addiction than reading, but the way she turned mere reading into a substitute for all else, is scary enough for me to stop and rethink my own obsession with reading.
The discipline required for activities such as exercise and personal grooming, is something I built and depended upon a lot for my recent recovery. Without it I would hardly be as ambulant as I am now. I have never been disciplined, even in childhood I didn't have a fixed bedtime. Although the symptoms of depression and fibromyalgia are often counter to what discipline requires of me, I have to fight them daily; on good days it feels like I'm canoeing against the current, on a bad day it feels like I'm pushing a boulder off of me. Sometimes I lose, then I go to bed and try again the next day. In such a climate, reading is my respite, but I have to force myself to consume it within set limits, so that I can at least brush my teeth daily.
Labels: books, pleasures, therapy, worlds
Sunday, October 23, 2016
my thoughts that confluence around my current #avalonreads #dailyreads
In response to Trauma Stewardship, Lipsky and Burk, and The Noonday Demon: An Atlas of Depression, Andrew Solomon.
I want to change the world, because ever since I have had awareness of reality, I have found this world to be tangibly sad; so different from the worlds in my storybooks when I first learned to read. Whether it was because I have depression that began in childhood, altering my worldview, or because the world truly is a sad place, that has no bearing on my ambition to do good in this world in a big way. My perspective may be skewed; the lenses of my proverbial glasses definitively not rose-tinted - tea-coloured, more like. It makes for keenly-felt suffering, either my own but more pronounced than its actual proportion, or that of others, human or animal, as though it was borne by me as well. This is very painful, sometimes even more so than is usually felt during extremely depressed states; this weltschmerz
may be triggered simply by current affairs. But it also empowers me; after I have reckoned with this pain I have the the unction to act upon injustice in aid of preventing this suffering, or on healing efforts after the fact.
I ask myself today, who am I apart from being God's child, apart from my parents or a string of significant others? In humility my answer used to merely be, "nothing," as it is sung, "I am a flower quickly fading, here today and gone tomorrow." But, if I need to be tethered to reality in aid of my own
suffering, I need to know more facets to the truth of who am I,
not in arrogant exalting of the self, but a refusal to deny looking at the mirror. Without observing my own reflection, acknowledging it, studying it, depression causes me to wholly believe I see nothing but a wraith in the mirror. I have learned to love everyone but myself, but I have failed to love my neighbour as myself, because my neighbour is God's creation and not a hollow-eyed wraith, long-dead and snuffed out. I have only known myself always as a part of another, like a moon orbiting Earth, when in fact I am greater than a star without a need to be attached to another. I must learn, that I am no longer a daughter in lack of parents' affection.
Labels: books, worlds
Wednesday, October 19, 2016
There are some days I don't have enough spoons to do a whole blog post on my daily reading; I will share a quote or picture on social media instead.
I'm at the chapter of health in Today Matters, by John Maxwell, where he exhorts the reader to make a decision towards healthy habits, and be disciplined in keeping them. His example of how exercise yields no weight loss in one day, but after a period of time, if done regularly, results appear - made me think about my obsession with reading.
I'm beginning to think that reading is helping me heal. The effects are small at first - just like exercise - you won't see any results overnight; you have to keep at it regularly. I still can't articulate how exactly reading is helping me, but I probably will, soon enough.
Reading aside, I do exercise daily. Less cardio nowadays but 18 exercises for specific muscle building as physiotherapy for my injuries, every day. Sometimes I can't even complete half of them all, but then I try to get back on track within the next day or two. No, I don't enjoy it.
John Maxwell does imply - very minimally - that the chapter on health includes mental health. I guess that my daily journalling, doing visualisation and mindfulness exercises, and weekly psychotherapy sessions count as taking care of my mental health.
I am still on Trauma Stewardship by Lipsky and Burk - I highly recommend it for anyone working or volunteering in helping professions which expose you to the trauma endured by our planet, by animals, or by fellow humans.
Today's chapter is on building compassion and community, the third of five recommendations to rebuild ourselves after exposure to trauma in our work. The first way to do so is in creating a microculture.
I feel this message of community repeating itself through what I read every day in books and online. But the truth is, right now I'm isolated. I'm not able to build a support network at the moment because I've taken a leave of absence from leading our organisations, which means isolating myself from the volunteers. Friends from the past have either moved on or are far too busy with family and work to reconnect.
People who - do - want to connect, I don't feel the same way towards them most of the time. Lack of chemistry? Perhaps I'm not ready to love a friend because I have no love to give right now. And, I've definitely tried to connect with the people I want to relate with, unfortunately they are usually very busy people. I think I will just stick to writing to an anonymous audience online for now, specifically here, Twitter and Instagram (no Facebook because I loathe that platform). Is that a microculture in itself?
Next, from The Noonday Demon, Andrew Solomon:
Fact: I am uninsurable because I am on medication for psychiatric condition; only those who have been off medication for say, three years, can be considered for insurance.
But as you can see from what Solomon has written, and a fact I know for myself, I am likely to be permanently on medication. Excluding the childhood experiences, the breakdown I've been on for the past decade is not the first; I had one around age 20 give or take (depression warped my sense of time then).
If not for my other half supplying me funds I would be without aid. Before I had him I tried asking for financial aid and was rejected. I've said this before and I will say it again: this country's government needs to do way more for mental illness patients.
I leave you with this, from Pinball 1973 by Haruki Murakami.
Labels: books, pleasures, share, therapy
Monday, October 17, 2016
#avalonreads daily summary 17 October 2016 | Priorities and Reflection
From Trauma Stewardship, Lipsky and Burk
Serendipitously the part where I am working on in this book is about focus and the part I was working on in Today Matters (below) was also about focus - that prioritising helps us focus on what is important.
TIL: Where we want to put our focus, in itself illustrates that we do have a choice in what we want to focus on, what work, and our lives apart from our work.
From Today Matters, John Maxwell
Reflection is something I've been doing a lot of, prompted by the questions raised in this book, and in Trauma Stewardship. I find these questions very apt as journalling prompts. In itself this book has little value without the reflection you need to do to follow what you read.
From The Noonday Demon, Andrew Solomon
Solomon quotes Emily Dickinson (my favourite poet!) And it could not be more accurate in describing how depression makes us feel. How does mental illness feel like to you?
From Pinball, 1973 by Haruki Murakami
In the same vein, today's QOTD: "The world awaiting him out there was just too big, too powerful; there seemed to be no place he could burrow into it." But also: "When I was in college, no one in my apartment building had a phone. Hell, I doubt any of us had an eraser."
Fiction brings to us characters we can emphatise with, describes life for us in keenly accurate ways, but also with jest sometimes.
Labels: books, pleasures, share, therapy
Obsessions: Reading and Books
When I saw this, I felt proud of myself for prioritising reading in my daily list of recovery activities: "Can Reading Make You Happier?" The answer was quite encouraging overall.
"Since the discovery of... neurons that fire in our brains both when we perform an action ourselves and when we see an action performed by someone else... A 2011 study published in the Annual Review of Psychology, based on analysis of fMRI brain scans... when people read about an experience, they display stimulation within the same neurological regions as when they go through that experience themselves. We draw on the same brain networks when we’re reading stories and when we’re trying to guess at another person’s feelings.
"Other studies published in 2006 and 2009 showed something similar—that people who read a lot of fiction tend to be better at empathizing with others... And, in 2013, an influential study published in Science found that reading literary fiction (rather than popular fiction or literary nonfiction) improved participants’ results on tests that measured social perception and empathy, which are crucial to “theory of mind”: the ability to guess with accuracy what another human being might be thinking or feeling, a skill humans only start to develop around the age of four."
So it seems that reading books, specifically literary fiction, helps us in our social intelligence. Good information, though I was digging for mental health benefits instead of empathy towards others.
But wait, there's more!
"Reading has been shown to put our brains into a pleasurable trance-like state, similar to meditation, and it brings the same health benefits of deep relaxation and inner calm. Regular readers sleep better, have lower stress levels, higher self-esteem, and lower rates of depression than non-readers."
Ah there we go. Although I sometimes stay up too late reading and it eats into my mandatory no-stimuli pre-sleep routine (for fibromyalgia symptom-prevention).
This information did nothing to alleviate my recent book-hunger. I keep on stumbling upon books that I have to have, to read. And I already have a book backlog (thankfully small for now) waiting for me.
But I earn no income from reading, or from the writing that results from the reading. Even if books help me recover, recovery doesn't pay for books either.
For now I make lists of books I would like to read, and window shop online, carrying a basket of books slowly growing, but not quite making it to the cashier yet.
The feeling of staring at the cart and yet unable to checkout really makes my heart yearn for them all the way from here in Singapore. (They are at Amazon.)
Labels: books, pleasures, state, status, therapy
a daily summary of what I've read in books today #avalonreads #dailyreads
If you've read my last post you must have learned I'm now on a mission to read more books daily. I decided to post a daily summary of QOTD/TIL snippets from each book I've read daily. I hope you might enjoy it as something different from the regular book review articles online. Here is today's effort:
From Trauma Stewardship, Lipsky and Burk
I am reading this as professional development non-fiction, even though the topic is focused on personal well-being. The book presents 16 signs that exposure to trauma - in our work of helping others, animals or the planet - has negatively impacted our emotional, physical and social well-being. It then presents five ways to realign ourselves to heal these 16 effects. I didn't work on this book much today at the time of writing, so here is a cartoon pulled from the various ones that pepper the pages with some humour.
From Today Matters, John Maxwell
The crux of this book is that if we make 12 important decisions early, and discipline ourselves to manage them daily, we will have success every day.
TIL: The first 1 out of 12 decisions is attitude; apply positive attitudes to tasks and towards people. But I was bothered by how antagonistic Maxwell described negative attitudes: I felt that my negative moods brought about by mental illness were disgusting. It may not have been his intent but that was what I felt.
From The Noonday Demon, Andrew Solomon
This book is full of innovative ways depression can be described. It is not just a mirror of myself, it is like a "beautify" filter option on our selfie camera app. Hence why I chose this book to embark on reading the creative non-fiction genre daily - it encapsulates what creative non-fiction should be, that is, the facts presented in beautiful language which opens up more insights than an academic-toned essay would.
From Hear The Wind Sing, Haruki Murakami
Murakami endures being one of my firm favourite for over a decade now, and this is one of his early stories, published as two stories, the second being its sequel. I have read almost everything else (except 1Q84, regrettably. I still want to get back to finishing it).
"So where are we headed?"
"Sounds good to me," I said.
Labels: books, pleasures
Thursday, October 13, 2016
latest thoughts on reading
After I spent a large chunk of my time in hospital catching up on my reading, I brought the habit home and expanded it even further. I have decided that reading is going to be part of my recovery "programme" at home. Every day, besides exercises and regular daily activities, I aim to check off writing and reading in a discipline manner. Recently I've also decided to read four books at a time.
Literary fiction of course remains a firm stronghold. I try to read prizewinning books, or those by my favourite authors. I also look up book reviews on Guardian Books which is my current go-to source for book recommendations.
I am also reading books related to my work, and that currently is about how it burnt me out. I name this category of books professional development non-fiction. I have always devoured books in this category as well, previously on fundraising and nonprofit marketing and suchlike. However I am more disciplined about it now, not only because I try to read further along in the book each day, but also by making systematic learning notes - handwritten. It really helps me internalise what I read and recalling the key concepts without referring to them, comes in a flash. And if they don't, the notes are easy to refer to.
To add to the above, I also now add personal development non-fiction. It can also be referred to as self-help books, but then it sounds flaky doesn't it. I also make notes the same way for this category.
Up and coming is the creative non-fiction genre. This is something I just decided upon. I think it sort of catches the good books that should be read, that don't fall into the above two categories.
I've also been reading at least a verse a day from the Bible - via mobile app. I make quick short notes in a note taking app on my phone.
We can't quite go without reading articles online, but the focus should be on books in my opinion. In this discipline I simply make sure I read something online every day. The articles could be via my Medium timelines, my Twitter timeline, or Twitter Lists such as topics on news or management. I sometimes expand this to include e-magazines via Zinio.
Perhaps through this disciplined manner of reading I might become more self-awareness, improve my writing skills, move further along on the no-end-in-sight recovery journey. But mostly I enjoy it, and they say reading (books) make intelligent/successful smart people, so ok then.
Labels: books, pleasures, therapy
Monday, September 26, 2016
Since I've been home
Reading is one of the few little things I've managed since I came home. I am slow to using it as a source for reading material: in the past month or so I have been spending a lot of time on Medium. It is to me, Tumblr for adults, Instagram but with words. Crowdsourced content-writing will of course, be littered with grammatical errors in many articles at the very least, but I get used to it if I like the ideas being conveyed.
It has been hard to get a structured routine going now that I'm home, and I still am not able to do every daily activity I need to do. It is tiring even for me to go to the bathroom, especially when I got a fibro pain flare when I first returned home. Recovery is much more of a full-time job than I first thought.
I managed to start journalling again, prompted by the delivery of my new notebooks and bottle of black ink. You might notice that, like online reading, it can also be done while lying in bed! It is something I've always justified - anything done supine is fine. But it is even truer now, because for me to get up and ambulate around the house is a hassle, and needs to be done with safety awareness in mind. So a lot of what I need are by my bedside.
I've needed a lot of sleep since I came home. The longest stretch was 22 hours of sleep where we only woke up to eat and use the bathroom. Hospitalisation for a long-term seems to be very tiring. I am still tired, albeit less so after that 22 hour-long sleep (yes, it helped).
Up till today, I still can't complete a single day's list of exercises. I keep trying, and failing, and just keep trying again the next day. Almost all of my daily exercises are doable in bed, save for a few which need me to sit up or stand. Yet I still haven't achieved it all. It doesn't make me any less, and I guess that is what I have to remember.
Labels: state, status
Thursday, September 15, 2016
Thoughts about finally going home
I am finally going home on Saturday. Home from hospital. Home, after almost 5 months. Home, able to walk with a one-handed walking aid, when 5 months ago I was in so much pain that I was supine and bed-bound for weeks.
Over the next few days, I will be stressed. Because I've been in a controlled environment for so long, even home will be a mentally and physically dangerous place to be. I told Asshole Dr from CGH (that controls my psychiatric meds) this very fact, but of course he not only didn't alter my medication with this in mind, he also decided that after seeing me for grand total of 5 times over 5 months, the psychiatrists who treated me for years before he did, were all wrong: I have Borderline Personality Disorder and not an organic form of depression. (Which is not true. May I also add that during each of these consults he had with me, he did not listen to me with a shred of empathy, preferring instead to pontificate eloquently on his theories.) I am being released into the real world with far less reuptake-inhibitors I need to simply not-feel-sad. Not even asking to be happy, I just want to be stable. But that's not on Asshole Dr's agenda.
Over the next few days, I will need to think about every logistic detail for my return home, including the right sized quadstick I can safely walk with. The nice one I wanted to buy costs too much to ship; my second option has a narrow base, but I trained to walk with a broad base, and haven't learned the narrow base yet (though I will eventually, through outpatient rehab). The furniture at home may need some shifting; at the very least, as much floor space as possible needs to be clutter-free, things I need to use have to be within reach. I also need to think about every minute detail of walking from doorstep to lift-lobby, where hopefully I can get an Uber driver to wait for me downstairs to help me to a parked car taking me to outpatient appointments. And then, the way back home, which is the aforementioned in reverse.
Over the next few days, I will need to start packing the stuff I have here in hospital, to get J to bring home in batches; otherwise there will simply be just too much to bring home on Saturday. I also need to buy diapers, disposable drawsheets to protect my bed from diaper leaks, exercise aids such as ankle weights and a hand gripper thingie. J needs to bring me clothes from home on Saturday. I know he won't want to, but he might also need to take leave - again - to trial-run with me a trip to the doctor's, and downstairs to the nearby shops.
Over the next few days, even after I make a hospital-discharge checklist, I will keep on thinking about "recovery" and how it translates into actual daily activities. Besides outpatient appointments, exercise, reading, journalling - is there any more time to do anything else? Or will I be taking on recovery as a full-time job now, and forget about my desire to work my heart out trying to make a difference in this world?
When I reach home and finally see my kids again (banned from visiting me while I was warded because they are pets) am I going to to withstand the barrage of emotions that come around? That I was willing to abandon them because I thought I was a burden to their father?
I am so, so sorry.
I could go on with this but I've reached the threshold where tears obfuscate my vision and my nose is getting clogged. I'm more than ready now than before, but going home is still gonna be a rollercoaster ride for me.
Saturday, September 10, 2016
I need help in my recovery.
It was not just one factor alone that led me to that day. My medical bills were as a result of my illnesses, my illnesses render me too incapacitated to work for money to pay this bills. My illnesses brought me to a very low point in energy and strength, physically and mentally, which resulted in heavier medical costs. But being in such a low point, I found myself unable to even ask anyone for financial help.
I cannot stop leaching money because my illnesses are chronic; I cannot be cured fully, ever. I will always cost money. Only the solution of my non-existence was viable for me in that state.
As a result, because I survived, I ended up spending almost half a year, in two different hospitals: Changi General Hospital, and St. Andrew's Community Hospital. In CGH alone, my estimated bill was over $40,000 for two surgeries and a 10 week stay.
If you would like to help me with a crowdfunding campaign, please email me at email@example.com to reach out. I want to focus on my physical and mental health and recovery, but eventually I need help with the amount of money my health and recovery costs. Yet, I am still at the state where I don't yet have the strength and energy to administrate a fundraiser. What is to a normal person merely the click of a few buttons, is to me a logistical monster I cannot handle.
Consider if you can help me set up, promote and frequently update a crowdfunding campaign. If you think this is something you would like to help me with, please reach out.
Friday, September 02, 2016
Today I officially started psychodynamic therapy as an outpatient. (I am still in hospital, but at a community hospital which is an intermediate healthcare facility designed for rehabilitation, primarily via physiotherapy. It is next door to and linked to the government hospital that I stayed at for 10 weeks in an orthopaedic ward.) This is at my previous hospital's psych clinic. When I am finally home in about two weeks' time I will continue as an outpatient at this clinic.
Just to let you know about the logistics accompanying this therapy: if I want to see this doctor for psychodynamic therapy at a subsidised rate, I need to also see the main psychiatrist-on-call I was assigned to on the day I was admitted after my suicide attempt. This psychiatrist is only for the psychopharmacological part of my treatment. But this psychiatrist happens to be an asshole. (More on that later.) It has to be an hour-long session every week on the same time and day, for a year. The doctor administering this therapy is really nice and pleasant, a deviation from the norm that is the government hospital doctor.
One element about this form of therapy is that it is fluid, without many directives from the doctor. Since it is the predecessor of psychoanalysis (featuring a couch and 'tell me about your mother'), it pretty much means I am supposed to talk in the stream of consciousness, and the doctor prompts from there when necessary. I started with a current trending topic in my life: medical care.
I shared about the TCUs i.e. follow up appointments I had recently. I can't recall the specifics because it has been a very fatiguing day. As I spun on and on, with prompts like, "It sounds like you have had a very bad experience with this hospital's doctors," I ended up summarising myself that competency and empathy were important traits in doctors I paid to help me. You really have to be interested in making me feel better. It seems foolish to have to state this but besides a couple of exceptions, government doctors don't benchmark their performance against how well the patient becomes after their care.
I gave a few examples of failed doctors and one of those was the psychiatrist I have to see for my psych meds. Things he does not do: address concerns regarding symptoms, explain rationales behind his prescribed treatments, adopt a genuine listener's posture and body language. One prime example is when I asked him to reinstate one of the medications I have been taking for years until I came under his care: Lexapro. I not only wanted to feel less depressive mood-wise, I also needed Lexapro to help me with anxiety. I am now only on Cymbalta but at a fraction of my previous dose. It doesn't matter if I feel fine with this regimen, or have equal or better ways to help (no, I don't want to rely on benzodiazepines, right?) Or even, at the very least, give me an explanation why doing without will make me better. His answer to why he was not going to reinstate one of my primary meds was, "Who here has a better track record of making decisions, you or me?" All while maintaining an arrogant posture of perhaps, a dictator. No shit!
Is it really too much to expect some bedside manners? Apparently so. As the therapy session continued, I once again verbally discovered that I need to feel validated, and that's why I feel so let down by medical doctors who don't listen to me. This asshole psychiatrist is not the only one of course.
My doctor then asked me if I had similar experiences feeling invalidated when I was young, because as we continued discussing this topic, he saw me getting teary-eyed. I didn't know why exactly either, so we had to wait till I thought up a reason. I eventually linked it to how I was written off as lazy when I was a child, when I couldn't wake up easily, springing out of bed full of energy as I assume children mostly do. I couldn't fall asleep easily at night, so I never could wake up early, feeling refreshed. It was insomnia. I also had low energy all the time, perhaps fatigue? But nobody knew. I was just a lazy child who often overslept for school and failed to complete homework on time. Maybe there was more to this, but by this point my hour with him was up.
Before I started psychodynamic therapy, I needed to sit down with this doctor thrice as he asked me about myself, my history, my childhood. Not everyone is suitable for this type of therapy. I wasn't told what markers was I being assessed against, but I will take a guess. I had emotionally traumatic experiences as a child that deeply affected me to this day. It is the same reason why the alternative diagnosis I have besides depression and anxiety, is chronic PTSD. I am not sure if my high sense of self-awareness also comes into play, or that I am willing and able to share vulnerable experiences I've had.
Well, I will keep going for this therapy and hopefully write more about it here. This doctor has the right mix of what I look for in a doctor-patient relationship. He listens well, never interrupting me mid-speech, not even for a phonecall. He engages me with eye-contact throughout the entire hour, and his body language shows he is totally focused on the session we are having; he doesn't even read or write any notes. He uses the right words where appropriate, like, "Sorry to hear that..." or "Correct me if I am wrong but it seems that..." He also explains clearly the rationale or structure of the treatment he is administering, to the level of my self-awareness. Not all healthcare professionals do that! Some just want you to adhere to a treatment plan because they say it is good for you. Hardly scientific, nor helpful.
Another thing I will keep on doing is journalling. It is different from writing online through tweets and blog posts, because it likewise needs to be open and unencumbered. Self-censoring for online posts means not all of your subconscious thoughts are being explored. I have thought however, how I can still share a glimpse of that which i journal. We shall see.
Labels: state, status, therapy
Tuesday, August 30, 2016
Is it too late for me to have a spiritual revelation?
My thoughts are dwelling on something I recently heard. I can't recall it word for word so I shall paraphrase. "If you strip away all that is superficial you will find at your core that this, this thing is what you wanted to do all along."
Will I find LKP at that core of me, in the present vector: right now, right here? I am unsure now. It has become plain that working on LKP reached tipping point for me. Recovery and self-care are, and should be henceforth, my focuses now. It will then leave little time for anything else.
But I still see it: the roaring fire that is our cat rescue work. It is part of me. When I peel away layers of me to expose my core, this fire is visible there. Yet the fire also reminds me of how drained I am inside from doing cat work. The flames keep licking, illuminating the darkness, but the fuel - it ain't me anymore.
I won't dwell on this any longer now that I have put the thoughts into written word.
Labels: state, status
Friday, August 26, 2016
There are so many things I would say to you, if I could speak to you plainly.
I miss home. The home I have with you. You make my life less empty, just by being in it, and I am glad I got as close as I did with you. I don't know how I can express that to you in future, when I am finally home. My physical state is different now.
Thank you for trying so hard to be kinder to me. I know you are making a lot of effort to do so. Doing intangible things, like taking charge of my doctors' appointments, dealing with the hospital bills we can't afford, and - forgiving me, encouraging me in my recovery as you put the past behind us. Your face lifts me up or gets me down: if you are upset, I am upset too, but seeing you smile lifts my spirits.
I am sorry for putting you on that highway road next to me as I lay collapsed. I could imagine your worries, your anger towards me, your frustration at talking to the uniforms, all while you had to think clearly above the trauma.
I don't know we will go from here, because I will need much more caregiving from you now than before. All I know is: I will make my recovery my full-time job now. Self-care. I am not sure how much that will alleviate your lifetime burden, but I will keep going for it.
Sunday, July 10, 2016
I am still here
Am severely injured, but alive, with a decent chance at full recovery, given how gravely I have harmed myself - that is a miracle I reckon.
Two and a half months since: I am still in hospital, as we concur I should return when I have achieved as much mobility and independence again as possible, even though I miss home terribly. I have at least another month to go.
It still hurts to think of that day, but the nightmares are over, the sudden onsets of its memories are now near nil.
I have gained new skills on how to cope with my mood and anxiety. I have gone through the severe, incomprehensible levels of pain of being injured and operated on, and emerged on the other side somehow. I still have pain, I still choke up when I recall what led me to this hospital bed, and what lies ahead. But I told myself repeatedly through this recovery process: one day at a time. With this mindset I have gotten through every day since 22 April.
I didn't even think I would be able to find the words to blog again, but here I am.
Will I ever be able to dance to trance music again? Go to beautiful places with people I love? There are so many limitations I have right now with my injuries.
Though I have come a long way, it is still a long way to go. To go into detail, right now my mobility is limited to a wheelchair. Because I have fractures at, among other places, my pelvic area and lower back, I don't have the full ability to control going to the toilet yet; I - have - regained a lot, managing to go off a urinary catheter, and urinary problems are far less now. Embarrassingly, I pee when I cough, orgasm or exert core muscles during physiotherapy, but I can otherwise control it now. It used to need a lot of exertion for me to urinate but now it is much, much easier. I wear a diaper thankfully! I need to because I still can't fully control my bowels yet (and to catch the pee leakages) - in the early days I couldn't even feel if the diaper was soiled, that was how numb my pelvic region was, and I am glad that is behind me. Now, at least some of the time I can feel it when I need to poop. All this is due to nerve damage from the fractures. It also causes my left foot to be numb and less flexible than my right. At first, even moving my nerve-damaged left leg was impossible without someone's help lifting it. Now, I am still not allowed to stand with it, because it has to not bear weight for three months in order to ensure the pelvic area heals properly. I have experienced horrendous nerve pain in my leg and foot too, as the healing of nerves means oversensitivity to touch and exertion, due to the way nerves communicate with the brain. Also, until two weeks later, I need to wear a brace when I sit upright in a chair, to help align my spine as the various fractures heal. This means I haven't been able to take a shower unless they cart me in a trolley bath and bathe me lying down. I also have fractures in my right arm, and have not regained complete use of it yet, exertion and load-bearing actions still need to hold off.
The psychiatrists here have helped me start sessions with a clinical psychologist, who is a gift. I may also do psychodynamics - a form of treatment that connects our present behaviour to childhood experiences, trauma. Apart from an insufferably arrogant and rude psychiatrist in charge of my case (many government hospital doctors are rude, but this one is the worst), the treatment I am receiving for depression and anxiety is sufficient right now.
My injury pain and fibromyalgia could be much better managed but I have reached a cynical, apathetic acceptance of the archaic and inadequate government healthcare system. I have given up the notion that I can receive the full help I need and have accepted that government hospitals are never going to help me completely in so many respects, including medication. I am trapped here in pain, receiving less than a hundred percent help, but I tell myself, "Forget it," because I have asked and they just won't give it.
I promise to update more now that I have caught most of my online audience (yes, all three of you) up to speed. Until then.
Labels: state, status
Friday, April 22, 2016
Thank you, and goodbye
"By the time you read this..." is a cliched way to start a suicide letter, but the marvels of scheduled posts make this beginning apt.
You would be no stranger to the fact that all along, J has been paying for my depression and fibromyalgia treatment bills. He told me recently, that he cannot take it anymore. I knew I had to crowdfund to save my marriage and continue getting help for my chronic illnesses.
I have fought my depression for almost a decade now, and every day it is an uphill battle. I realised today, when I had pain set in simply by being out doing cat work for less than 4 hours yesterday, that I probably don't have the strength to raise funds for myself the way I intended to when J said he couldn't take the financial burden of my medical bills anymore.
I don't blame him for thinking I haven't been fighting hard enough over the years. It hasn't been easy for him to provide the basic care I need.
Of course I have been fighting hard, daily, year on year. But really, when is enough, enough? Today I am fighting pain that I want to kill, and firmly decided as well I no longer want to be a burden to J.
I know many of you who are also fighting your own battles have seen me as a survivor. I am sorry that today, I end my survival. I am sure you can continue to go on without me.
Please take care of everything that is important to me.
Thursday, March 31, 2016
When volunteers disappoint
This is a sensitive topic. It is about people, hence.
Within my loyal, dedicated, motivated and committed volunteer family, I have some black sheep. Usually it is because their work in real life gets in the way.
When you often use your work as an excuse to fail at your volunteer commitments, to become a mediocre instead of excellent volunteer, you slight the rest of the family who - also - have work in real life. You are saying this to them: "Yeah my work is really important. Not like yours."
The volunteer family believes in excellence, not mediocrity. They don't just volunteer to pass time; they aim to change the climate of cat welfare in Singapore through whatever skills they can master. They are often humble, believing there is more they can learn, more they can change for the better.
Not everyone who loves cats are as noble as my volunteer family. Unfortunately I have some who are in the family that don't have this nobility. It doesn't anger me. It slights me a little. But it utterly disappoints me.
I have no qualms sending what our organisation calls Volunteer Valuation emails to people that need to buck up after failing time and again at various areas. I have no qualms asking these people to leave if they fail to change. I seldom have to do it, but sometimes it is necessary. Leeches need to be removed before they inject too much anti-coagulant into our system.
But I also believe people can be mentored towards becoming better at serving at LKP, becoming more fervent about our mission, taking ownership of the work that we do for cats, and building character values along the way. I always try this method first, sometimes to my own detriment. But I do this because I believe in people, and I love my volunteers as much as I do the cats. Just because cats cannot disappoint me, doesn't mean I don't love my human volunteers.
Which is why disappointment is the biggest emotion when volunteers fail at their tasks, not anger. Because when you love someone, expect their commitment and they fail, you get disappointed, not angry.
Wednesday, March 30, 2016
Yet, yes I still love you
I am used to emotional abuse:
A change from that is refreshing!
But alas that I know -
It cannot remain so
Yet I will always forgive you
For being cold.
I am used to it:
Needing to hide my tears
My pain invalidated
Seeing your disapproval
Not getting help when I need it.
Yet, yes I still love you.
Tuesday, March 29, 2016
no rest for my medical leave
I wanted my medical leave to be free from stress but it doesn't seem to be happening. I still get inundated by requests to do things, and I still have to attend to matters when situations go awry.
Today is one of the worse days. Phonecalls, texts, vendor screw-up, negative comments. A sense that people let me down, and I don't even set very high standards.
And part of me doesn't even care anymore. Say what you will. Think what you want. I am on a break for fuck's sake. Leave me alone!
I just wanna sleep and never wake up. I already feel of zero worth and like a burden every single day. To not wake up anymore would just be an added bonus: of not having to go through all this stress anymore.
I just had a xan*x and a beer and I feel no relief from this stress at all. I have no other ideas how to get out of this spiral of stress and feeling trapped by it.
I just want to give up.
Sunday, March 13, 2016
Words seem to want an outflow tonight, so here I am. What words exactly, I do not know. I actually feel like I might learn more from reading instead. But truthfully, I am too stressed, fatigued and anhedonic to do either of them.
Will just keep trying. If not write a post, at least maybe a tweet.
Thursday, March 03, 2016
It hurts to tell you about it.
The floodgates broke after I wrote the last entry here, explaining my absence from real life. It made me sadder, to recollect and organise my feelings, to make them coherent for the one or two that would read them.
Now the pain still hasn't gone away. Not only am I having chest pains from sadness, tears that won't stop flowing, I also realise there are very few people who do care at all about the invisible suffering I have to bear.
Life goes on for the world as if to mock me. This makes the pain even more pronounced. It hurts so much, I have run out of words to describe it.
On Friday last week I visited my psychiatrist, and I was symptomatically buoyant. It had been a hard week at work, and somehow, I exuded normalcy, instead of a low, dysfunctional mood. My doctor wanted to take the risk trying to reduce one of my antidepressants, Lexapro; I am currently on three different antidepressants among other medications. He wanted to reduce the cost of my medications and the risk of serotonin syndrome because I only recently went from two to three antidepressants. He told me to try half the dose on alternate nights. I tried it, eager to reduce the cost of my burgeoning medical fees, and the side effects of my medications.
It didn't work. I crashed into a horrible darkness, and after four days of being on this reduced dosage only did I realise it was not to be the new dose I could sustain.
At first, I just thought I was tired. After the week I had, it seemed like a foregone conclusion - who wouldn't be tired after the kind of week I had working late nights even past midnight, seeing the death of three cats one after another, bursting inboxes of work waiting for me to work on but never having the time? I was tired, I thought. But it was more that that. It was a descent into a painful depressive state.
This descent, mirrored early days of my depression, so long ago I barely remember. All I wanted to do was stay in bed. At first I distracted myself watching documentaries, but on Tuesday, the spell of those documentaries broke. And so did I. Days of accumulated tears welled up and I broke down, feeling a sadness that made my chest hurt as it something forceful was crushing it slowly but surely. It hurt so
That night, Tuesday, I went back on my original dose of Lexapro, a dose I have been on for years, 20mg. It hasn't yet reversed the effects of those four days. I find my self sleeping constantly, unwilling to be contacted by anybody because talking, working, is simply too difficult. I stare into space for a long time, before catching myself doing so. The few things I force myself to do every day - feed my youngest pets, showering, taking my medication - take up all of my energy, I have none left after that to do much else.
I think of the work I have abandoned by going AWOL, in a sense, and I realise in stark horror, that I do not care. Anymore, or right now, I am not sure. But I have no ability to care about it now. My love for all work that is charity seems to have been extinguished by wet fingers on burning candle wick or something harshly similar. I don't know when this love will return.
I am still sad. I still cry. I still sleep all day and all night, struggling to do simple things like preparing food for Scotty and Splotch, or to shower. I still stare into space. It has only been two days I have been back on my original 20mg dose of Lexapro; I do not know when I will become functional again.
Till then please accept that I am nowhere near the state of mind to be coherently spoken with in any form. I have switched off my phone for days. I do not want to speak to anyone.
Monday, February 08, 2016
Suicide watch @ Mt E
Today will be day 4 of my hospital stay. I am no longer soaking tissues with tears and the painful sadness that is depression, augmented, is back at the recesses of my library of feelings, stowed away for now.
Like I told my doctor I don't feel 'happy' on this new med, Stablon, just - not sad. To me it is good enough. He says, "But I want you to be happy!"
I don't think it is possible. My brain is just not capable of producing the happiness feeling. I have come to terms with this probable fact.
It doesn't matter.
Sunday, January 31, 2016
sleeping is bliss; trying to sleep, a chore
Told my psychiartist that I wanted off olanzapine. It made me obese. Not even through making me hungry; the weight gain just occurred and morphed me into marshmallow man. But now, I keep waking in the middle of the night again.
It isn't even waking me into a sleepy stupor that I can use to coax my body back to bed. I am sleepily -awake-.
I am at the level of consciousness where I could do some productive work. But I'm mentally exhausting, so tired inside and out.
So, so tired.
Tuesday, January 26, 2016
Recently read that journalling helps with leadership development - promotes introspection. So here I am, awoken in the night, failing at resuming sleep, trying to introspect.
I have many failings. But I am too tired to work on them because I spend all my effort managing my life around managing my fibromyalgia. When my fatigue is overwhelming, I need a few days' worth of rest for a day of work. The economics of my life.
I can't help but fall short every time.
I am really tired of being on the run, chasing productivity and self-improvement. Yet I keep trying, and tire myself even more. I am simply never good enough for the standards necessary.
I won't be giving up, despite feeling this weary. I just feel I owe it to everyone to be a better leader and manager. I -will- always fall short of the standards; maybe effort alone counts too?
- there, I've just journalled.
Friday, December 25, 2015
25 December is the date most of the modern world delebrates my Saviour's birth, but 26 December, the day after, holds triple personal meaning for me. It was when my first cat Slinky died, which broke my heart to a million pieces. It was the day my cat rescue group got legally incorporated 2 years ago. Now, it is also my wedding anniversary, and we are actually going on holiday on that day this year. Which I secretly hope will become a yearly tradition.
I have never been able to step away from my cat work long enough, till the later half of this year, when the leaders were chosen, stepped up and were built up to work without me. Be it because I needed the rest, or because I have been incapacitated by illness.
I don't actually earn an income so I quote-unquote bought J Calvin Klein boxers and generic black socks that will be easy to find matches for in the laundry because they all look the same. I also got a new silver and ruby ring made that is more suitable for daily wear, and the silversmith who made it did it for me for free, as a donation. She is known as Mei's Creations on Facebook.
We are going to Cameron Highlands tomorrow which is the kind of weather I like being in; I am usually sweating right after I take a shower in the daytime, in Singapore weather.
I hope every Boxing Day will be a holiday for me. Slinky would want that. As long as we put out enough clean litter and kibble and water for the days we will be away. My youngest, Splotch, will be going on a sleepover with her biological brother during the time we will be away, since she is still small.
Labels: pleasures, state, status
Tuesday, December 22, 2015
2016 and writing
I wish I could write well enough to have a Patreon account. Or maybe the missing element is time and not talent. But who, anyway, would commission me to write a poem for them. Nobody pays for poems.
But I am resolute: I will write more. Fight anhedonia, indulge in hobbies. Writing, and reading. Am now reading Margaret Atwood's The Heart Goes Last. Can't be good at writing without reading, can't be a full lover of words without doing both.
Labels: share, status
Sunday, December 06, 2015
I just woke up. I probably slept two hours. My nose is runny and sneezy and i have "flu' like symptoms" plus I just shat myself. Yeah I am not even able to fight off a simple bug.
Emotionally I am a train wreck. No, more like a plane crash and nobody can find the black box. I feel like I might breakdown any minute unless there is pharmaceutical intervention. Sometimes though, I can barely get up. go to the pills, consume them.
Is this an emergency yet? May I ask for permission that you help me in an emergency? Wait, may I have permission that you treat me like an emergency?
Sometimes the harsh 'no' is a stab wound to my broken heart.
Saturday, November 21, 2015
dimalam pakai bicycle pergi kerja? (tak boleh tidur)
I woke up at 1am. Started again on improving the notebook experience on the new tablet phone J got me for my 36th birthday.
(I also did my daily Gratitude Journalling).
Wrote the Big 5s of Saturday -and- Sunday and suddenly, an urge to go into cattery to work, where my laptop is now. I came here to write so I can mull over such a rash decision.
Nak pergi kerja, tak pergi kerja?
IN THE MIDDLE OF THE NIGHT.
I could feed the cats that missed one medication and because of me.
I might even be pain free enough to cycle there. Haven't cycled in a while, am getting fatter and I need to clock cardio for fibro management.
I'm in the tail end of a pain flare though, .'twas 5-7/10. I am not sure the flare has broken after my night meds and supposed sleep.
Maybe I'm just having a mild manic behavioural state.
Wednesday, November 18, 2015
guilt of the workaholic
Awake, when it is way past bedtime.
Because I knocked out in the day and slept from post-breakfast to 7pm. Had to work so I downed a small mug of coffee.
So I'm on my tablet doing things instead of sleeping.
I think it is guilt. I wasn't very productive, so, I feel I haven't had my workaholism hit for today.
But then now I feel guilty about not sleeping.
Saturday, November 14, 2015
renewing my love for books
This is my birthday month so my parents are giving me money.
I decided to use it to renew my love for reading and bought books.
Friday, November 13, 2015
A Wishlist Item I Really Would Benefit from
MedCenter (70265) 31 Day Pill Organizer with Reminder System
to write and read myself to sleep
I can't sleep. It is past midnight, I have taken my meds, and an antihistamine for flu' too, because I am nursing one. Still, I remain up. Like my day is not done yet.
Hoping to write myself to sleep.
I regained interest in reading even more now, but non-fiction, for professional development. I feel like doing that now to tire out myself maybe, then sleep. It will be tiring reading because I will take notes and stuff too.
Hoping to read myself to sleep.
Maybe, with some ginger tea too.
Monday, November 09, 2015
/cast Grounding Totem
/cast Grounding Totem
Having an anxiety streak now and feel like l will dissociate if I don't find the grounding totem l need to firmly grasp onto.
Saturday, November 07, 2015
EIaine, remember these things from the weekend
I am writing this for myself, because in the coming few days, in fact, from tomorrow I might forget it all.
Tomorrow I will be back home from this 2-night stay at a hotel in town. All of what I am protected from just like when I am in a hospital, I will be exposed to. Triggers, when I am now still feeling more vulnerable than usual, hidden in plain sight. I am a bit afraid. This is cheaper than staying at the psych ward but I still can't stay here forever, right?
So here is where I remind myself things, what will be different when I emerge from this retreat.
I will have daytime cattery help. For two reasons: new intern soon, and volunteers volunteering to do more than their usual night shifts over the next few days, as they already have started to do for me. Because my psychiatrist said that my work-sleep-work-sleep routine was a sign of burnout. So now, I can start to unburn, and then burn again but slowly.
I have rested. I am not properly rested actually, because I spent most of today doing work on my tablet in bed, while J was studying at the lower level of our hotel loft. Then I tell myself that it means I will have a better night's sleep. (We will find out soon enough.) Also, I will not be jumping straight into burnout mode again - see paragraph above.
I had worried that I haven't unstoppered my horrible anhedonia, where all I enjoy is work and sleep, then I realised that right here, I have regained one of my hobbies already: writing, on my blog.