Wednesday, April 02, 2014
my journey with a new chronic illness. fibromyalgia
Have been quiet here lately because something not too good unravelled.
I have been diagnosed as having fibromyalgia
. It is a chronic pain condition that is accompanied by other symptoms. The accompanying symptoms I get are dizziness, blurry vision, talking to people in half-sentences, a blank brain of sorts that disallows me to do things efficiently. I also have the sudden hot flushes, and lousy sleep.
The catalyst that led me to see my GP was when my legs hurt so much suddenly - I could barely walk - and all the painkillers I had, even the strong ones, were not working. My pain score was at about 8/10. I felt like someone took a baseball bat and swung it hard against my legs.
The GP did a physical check up, turns out my knees have no injury or inflammation whatsoever. After the physical check up, and since he knows I have depression (fibro and depression are all linked to the brain), he knew that what was causing my daily excruciating pain was fibromyalgia. We sorted out a medication regimen that would help for now, one including increasing a dose of one of my psych meds, which he told me to communicate to my psychiatrist. He also said that my psychiatrist would be able to manage my condition. He is on leave right now but I have been updating him on my fibro journey via email and he also called today. At first he said I need to see a neurologist but I don't want to, I cannot afford it. My doc said okay, I reckon he means that he will help me with this new illness.
Everything has been so far so good - take my meds, and wear my specs throughout the day even though I actually only need it for reading, otherwise I can't see properly.There are some side effects and symptoms I must eradicate. I have to have a clear mind, be able to communicate, remembering things well again, and being mobile (not splayed on the floor crying in pain). For this to happen, I might get dizzy, for which I have medication for it, or drowsy, but I need to be mobile with a sound mind for me to carry out the management work required for our cat rescue work.
I still haven't really come to terms with this diagnosis of -another- chronic illness though. Even with the fibro symptoms being managed it is difficult to bear without tears. But soon, I will be more positive more often, and am more than sure I will get through this.Been making sure my mood is stable.
I will share more updates on Twitter (@avalon) and on my Facebook page
. Also, am sorry if this blog post is haphazardly done, I still have blurry vision and am very drowsy from meds and terrible sleep last night.
Labels: me, state